North Wales Cancer Data missing

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EPIDEMIOLOGIST SPEAKS OUT
Public Health Wales are supposed to be collecting cancer information from the rest of the NHS in Wales and feeding into a database which  gives us data on cancer rates, incidence and prevalence.

For some years the system for collecting death certificates has not been working properly so this has not been recorded on the database. The 'flagging' system has not been done properly either so does not follow people when they move between NHS areas, so records are not updated if that person dies from cancer or not. If you look at the reports that are published then rest of UK does prevalence and incident but Public Health Wales is under instruction to avoid doing incidence so that they do not have to admit that the data is not all there.

The official line for any query on prevalence rates that are missing is to try to persuade the person asking for the information that they do not fully understand statistics and as the experts in public health recommendincidence instead of prevalence then that is probably what they really want.

Hanson Investigation Sham
What this ultimately means is that the data that would be needed to do a proper health study in North Wales is not there. Mr Andrew Jones has known this all along and Edwina Hart knows it too so why are they leading the people of North Wales on?

Mr Jones promised that Public Health Wales were going to do a proper review of cancer rates after complaints that previous studies avoided looking in to the real problem. How can they make this promise when they know the data is not there? Well there are a few tactics in hand to try to keep it covered up. Mr Andrew Jones had chaired a lot of meetings with us and said it was to 'fully understand concerns' before deciding what data would be looked at.

In reality he knows the data is not there and he has chosen to try to persuade North Wales people that they really want something other than the cancer study and the meetings and press releases are designed to steer our attention on to environmental concerns instead.

The other con trick is that he is writing the Terms of Reference and any proper study into cancer rates is not going to be on there so that if we complain at the end then he can say ‘We just followed the terms of reference which everyone agreed.’ The plan is to make the terms of reference so limited that no studies will make it on there that need the missing data. That means the cancer studies. Or, to limit to restricted types of cancer is very specific locations where they happen to have a little bit of data even if it is not of central relevance.

The other plan is to run sessions with the people of North Wales to 'help them understand what public health does and how it can analyse information.’ The word ‘expert’ will be used a lot here. The purpose is to make anyone who thinks there should be some straight forward analysis of cancer rates see the error of their stupid ways when the experts explain why information completely unrelated is what they really want.

The other tactic is to 'put it in the wider health context of Wales' and this gives a chance to blind the village idiots of North Wales with hundreds of overly complex statistics and graphs showing every factor and trend line under sun apart from straight forward cancer rates. Anyone who spots that the emporer has no clothes on will be corrected by an ‘expert’. There are proper public health doctors out there with too much integrity to see this happen and this brings shame on the medical profession who should be honest and not side with the politicians in a game of cover up.

Another tactic is the 'Can't commit to a timescale in the interests of the North Wales Residents having a proper chance to meet with Mr Jones and his team a number of times' this is a delaying tactic that relies on the residents getting bored with the substance less waffle in the meetings and tune out until the report findings are published and when they complain that cancer statistics aren’t in there they will be told that everything was completed as per terms of reference (no mention that these were terms of reference not shared with or agreed by North Wales residents). Then we will have to wait another 5-10 years before we can persuade anyone to do another investigation.

If people were really getting cancer, and other awful diseases from the cement work emissions, why would any government be saying 'we have to take our time and do the analysis slowly' unless there is something to hide. The longer it goes on the more people could be getting cancer, if the information was really being collected as it should have been then the information could be produced in a couple of weeks maximum, and any unnessary cancer deaths could be prevented. It’s a disgrace if people are willing to let this happen rather than own up to management mistakes. We are being conned and bare faced lied to at these meetings.

Another tactic to watch out for is the diversion. This works by publishing whatever cancer statistics are available, even when they are not relevant to the investigation, and then claiming cancer issues are dealt with and it is time to move on to the environmental issues. Of course, the right cancer statistics were not published but they are hoping no-one will notice as they herd us like sheep into the ‘time to talk about environment’ pen.

Maybe there is something even bigger behind this. Its worth asking who set the emission rate for the cement factory in the first place and therefore would be liable to public outcry and huge compensation claims if they had to admit it was too low. Now was that public health or environmental health, or both? Perhaps Mr Jones could explain given that he worked in the environment agency at the time.

Well people of North Wales its time to wake up to how we are having the wool pooled over our eyes at these meetings and Mr Jones and Edwina Hart have known it all along. This is about our families and our community. It’s about our loved ones getting cancer and the tragedy of experiencing needless suffering and death. We deserve honest and genuine answers and not this political spin and cover up. They have known all along that they can’t do the cancer studies we want done but they are willing to cover it up. They would rather hide their own mistakes and even if it means letting the cancer continue.

Get coordinated people!
The final, and probably biggest tactics that will be used are the ones we have handed on a plate ourselves:
We have got a good sense of community and proper moral values. We are not used to politics and deviousness of this scale so we naturally trust the investigation team. Big mistake.
We do not have a single campaign group so our voices are diluted. Part of their plan will be to meet with us on an individual basis in a divide and conquer approach so that we never group together and find out everyone-else feels conned too.
If we had a co-ordinated group, we could insist on more power rather than being passive residents letting ‘experts’ take control.
We must insist on agreeing the terms of reference. We must make it public now that the terms of reference will be rejected by residents if it is a white wash. This is currently their master key and its one they have played hundreds of times in other political white washes and people fall for it every time.

We need to record every commitment they make as they will rely on us not having any evidence that promises were made and not fulfilled.
Can we get together one central website so that we can coordinate our power and passion in one place?
We need to meet as a group and agree a ‘list of demands’ based on the precise investigations we want done and not let ‘experts’ roll over us. If the issue is about expertise, then let’s get some independent people on our side.
By inviting separate submissions, they have control over what they report the key concerns of residents to be. So we need to make sure we can list as much of it as possible in case they conclude most people are more interested in things other than cancer!

Keep an eye on dates and deadlines. This can be used to limit our influence.

Insist on a copy of all documents otherwise ‘decisions’ will be recorded in documents we don’t see.

Ask Mr Jones why he has refused Freedom of Information act requests on cancer data?

Ask the Office of National Statistics to confirm what is missing from the Welsh submission as they will not be over-ruled by Mr Jones’ cover-up team.

Do freedom of information requests on how many information governance incidents there have been in last two years at Public Health Wales.

This will prove they know about the data problem.
There is a deliberately plan to push us towards thinking that we want environmental factors looked at and not cancer. This would be done by setting the agenda of meetings, by ‘closing that phase’, by bringing specific experts, by pretending it is what we asked for. If this happens, and it already has, and it does not get challenged, then we will be seen as agreeing implicitly. We need to talk up at the time.
There are many public health consultants and statisticians with real morals who would not lie and cover up at the meetings. That is why they are not there. That doesn’t mean we can’t invite them to meet with us so we can talk this through and see honestly and openly what can be done from the information that is there. It is not part of medical ethics to lead people on and leave their communities with cancer just for political gain. This is negligence beyond words as he is willing to let people go on dying just to cover up for Edwina Hart. This is corruption on its grandest scale. Many doctors and statisticians in Public Health Wales would break silence if we could speak to them directly.